The Editor of Lupus Now® magazine needs your help with the Summer 2013 issue.
Ultraviolet light and lupus
Has lupus caused you to become sensitive to artificial indoor lighting? If so, we would like to talk to you. Write to us at lupusnow@lupus.org, with "UV" in the subject line. Please include a little bit about how UV affects you and how you cope, along with your name, location, and telephone number.
Lupus Blood Disorders
June is Antiphospholipid Antibody Syndrome (APS) Awareness Month. If you have lupus and APS, or if you have had other blood disorders due to lupus, we would like to talk to you. Write to us at lupusnow@lupus.org, with "blood" in the subject line. Please include a little bit about your history of lupus, along with your name, location, and telephone number.
Sisters with lupus
If you have sisters with lupus in your family, we would like to hear from you! Write to us at lupusnow@lupus.org, with "sisters" in the subject line. Please include a little bit about yourselves, along with your names, locations, and telephone numbers.
My View column
In recognition of National Inventors’ Month in August, what would you invent to make your life with lupus easier? Send your idea, in 30 words or less, to lupusnow@lupus.org, with "inventions" in the subject line. We’ll print as many as we can in the Summer magazine, and post the rest online at lupusnow.org.
Thanks so much—without all of you, there would be no Lupus Now magazine!
Showing posts with label Lupus Now magazine. Show all posts
Showing posts with label Lupus Now magazine. Show all posts
March 04, 2013
Lupus Now: Spring 2013 Preview!
Inflammation in the renal system is one of the most common complications of lupus. The cover story in this issue takes a close-up look at how advances in understanding and treating lupus kidney disease are changing lives.
Are you wondering exactly what the Affordable Care Act means for you? We look at coverage for people with pre-existing conditions, and more, in our story on health care reform.
Developing a new drug takes a lot of time and investment, and many willing participants—especially for a complex disease such as lupus. Follow along as the Foundation’s Medical Director discusses the process of clinical trials of potential lupus treatments and access to care issues.
Do you know the symptoms of an overactive or underactive thyroid? Get informed with our article on how a malfunctioning thyroid can affect you when you have lupus.
Don’t miss the stories in our Lupus Living section: tips on lowering stress, how a pet can help your health, choosing a legitimate online pharmacy, and ways to manage medication costs. Plus, in recognition of Lupus Awareness Month in May, find out what our readers want the public to know about lupus.
From the Foundation’s new call to action, Help Us Solve the Cruel Mystery™, to the 45-foot Purple Bus Education and Awareness Tour, you won’t want to miss a word of the Spring issue! Subscribe today!
Are you wondering exactly what the Affordable Care Act means for you? We look at coverage for people with pre-existing conditions, and more, in our story on health care reform.
Developing a new drug takes a lot of time and investment, and many willing participants—especially for a complex disease such as lupus. Follow along as the Foundation’s Medical Director discusses the process of clinical trials of potential lupus treatments and access to care issues.
Do you know the symptoms of an overactive or underactive thyroid? Get informed with our article on how a malfunctioning thyroid can affect you when you have lupus.
Don’t miss the stories in our Lupus Living section: tips on lowering stress, how a pet can help your health, choosing a legitimate online pharmacy, and ways to manage medication costs. Plus, in recognition of Lupus Awareness Month in May, find out what our readers want the public to know about lupus.
From the Foundation’s new call to action, Help Us Solve the Cruel Mystery™, to the 45-foot Purple Bus Education and Awareness Tour, you won’t want to miss a word of the Spring issue! Subscribe today!
October 15, 2012
Tell Your Story in the Spring 2013 issue of Lupus Now
The Editor of Lupus Now magazine seeks people to interview for the Spring 2013 issue.
May is Lupus Awareness Month. What do you want the public to know about lupus? Send your answer in 50 words or less to lupusnow@lupus.org, with My View in the subject line.
If you were 60 years of age or older when you were diagnosed with lupus, we’d like to hear from you. Write to lupusnow@lupus.org, with Late Lupus in the subject line.
If you have experienced thyroid complications as well with lupus, we’d like to hear from you. Write to lupusnow@lupus.org, with Thyroid in the subject line.
Is your adult child with lupus on your insurance plan? If you are self-employed, what health insurance coverage do you use? Have you benefited from the new laws about no denial for pre-existing conditions? If so, write to us at lupusnow@lupus.org, with Insurance in the subject line.
May is Lupus Awareness Month. What do you want the public to know about lupus? Send your answer in 50 words or less to lupusnow@lupus.org, with My View in the subject line.
If you were 60 years of age or older when you were diagnosed with lupus, we’d like to hear from you. Write to lupusnow@lupus.org, with Late Lupus in the subject line.
If you have experienced thyroid complications as well with lupus, we’d like to hear from you. Write to lupusnow@lupus.org, with Thyroid in the subject line.
Is your adult child with lupus on your insurance plan? If you are self-employed, what health insurance coverage do you use? Have you benefited from the new laws about no denial for pre-existing conditions? If so, write to us at lupusnow@lupus.org, with Insurance in the subject line.
March 14, 2012
Sneak Peek of Spring 2012 issue of Lupus Now Magazine
Maurissa Tancharoen Whedon is behind the successes of hits like Fox’s Dollhouse, and the Web series, Dr. Horrible’s Sing-Along Blog. But the cover story of the Spring 2012 issue of Lupus Now magazine is not about that. Don’t miss this exclusive interview on Mo’s life with lupus, and how the love and support of family and friends makes all the difference.
There is much uncertainty and misunderstanding about the many ways that the lungs and pulmonary system can be affected by lupus. Learn about warning signs you should never ignore, and much more, in our feature, “Breathless.”
One of the most upsetting ways that lupus can affect the body may be hair loss—especially for women. Whether due to medication side effects or the effects of the disease, hair loss is common and frustrating. We talk to hairdressers and offer solutions in “Hair Care.”
In The Mourning Bride, English playwright William Congreve (1670–1729) wrote, “Music hath charms to soothe the savage breast/To soften rocks, or bend a knotted oak.” From Bach to Beyoncé, find out how your favorite kinds of music can soothe the stresses and strains of lupus in “Staying in Tune.”
When you see the word “biomarkers,” what do you think of? It’s a hot topic among lupus researchers, not least because of the importance of biomarkers in clinical trials of new treatments and therapies. Find out how the LFA supports the groundbreaking work of today’s lupus researchers in “Biomarkers of Lupus.”
The importance of medication adherence and the effects of depression on teens with lupus; the link between cardiovascular disease and lupus nephritis; results of clinical trials of abatacept: Read about all this and more in the first part of a summary from the annual ACR/ARHP scientific meeting.
And there is lots more in the Spring issue—don’t miss it! To subscribe, visit www.shoplupus.org/subscription.htm.
There is much uncertainty and misunderstanding about the many ways that the lungs and pulmonary system can be affected by lupus. Learn about warning signs you should never ignore, and much more, in our feature, “Breathless.”
One of the most upsetting ways that lupus can affect the body may be hair loss—especially for women. Whether due to medication side effects or the effects of the disease, hair loss is common and frustrating. We talk to hairdressers and offer solutions in “Hair Care.”
In The Mourning Bride, English playwright William Congreve (1670–1729) wrote, “Music hath charms to soothe the savage breast/To soften rocks, or bend a knotted oak.” From Bach to Beyoncé, find out how your favorite kinds of music can soothe the stresses and strains of lupus in “Staying in Tune.”
When you see the word “biomarkers,” what do you think of? It’s a hot topic among lupus researchers, not least because of the importance of biomarkers in clinical trials of new treatments and therapies. Find out how the LFA supports the groundbreaking work of today’s lupus researchers in “Biomarkers of Lupus.”
The importance of medication adherence and the effects of depression on teens with lupus; the link between cardiovascular disease and lupus nephritis; results of clinical trials of abatacept: Read about all this and more in the first part of a summary from the annual ACR/ARHP scientific meeting.
And there is lots more in the Spring issue—don’t miss it! To subscribe, visit www.shoplupus.org/subscription.htm.
February 09, 2012
The Editor of Lupus Now® magazine needs your help with the Summer 2012 issue!
Unusual jobs: For our cover story we are looking for men with lupus who will talk about how they balance their out-of-the-ordinary job with the challenges of lupus. If that description fits you, write to us at lupusnow@lupus.org, with "unusual" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Play: Do you still get silly and play the way you did as a child? We’re going to write about the importance of playfulness, and how acting like a kid again can benefit your health. If you know how to unwind and how not to act your age, write to us at lupusnow@lupus.org, with "play" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Spirituality: Has a sense of spirituality helped you on your lupus journey? If you have some suggestions for other readers, write to us at lupusnow@lupus.org, with "spirit" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Skin: Symptoms of cutaneous lupus can range from rashes to lesions, causing scarring, changes in pigment, and more. If you have experienced skin involvement due to lupus and you can talk about treatments that have helped—whether from medication or a procedure—write to us at lupusnow@lupus.org, with "skin" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
My View: Maybe nothing comes more naturally than daydreaming about summertime during the chill of winter. Send a description of your ideal summer vacation, in 30 words or less, to lupusnow@lupus.org, with "vacation" in the subject line. We’ll print as many as we can in the Summer issue, and post the rest online at lupusnow.org.
Play: Do you still get silly and play the way you did as a child? We’re going to write about the importance of playfulness, and how acting like a kid again can benefit your health. If you know how to unwind and how not to act your age, write to us at lupusnow@lupus.org, with "play" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Spirituality: Has a sense of spirituality helped you on your lupus journey? If you have some suggestions for other readers, write to us at lupusnow@lupus.org, with "spirit" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Skin: Symptoms of cutaneous lupus can range from rashes to lesions, causing scarring, changes in pigment, and more. If you have experienced skin involvement due to lupus and you can talk about treatments that have helped—whether from medication or a procedure—write to us at lupusnow@lupus.org, with "skin" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
My View: Maybe nothing comes more naturally than daydreaming about summertime during the chill of winter. Send a description of your ideal summer vacation, in 30 words or less, to lupusnow@lupus.org, with "vacation" in the subject line. We’ll print as many as we can in the Summer issue, and post the rest online at lupusnow.org.
January 31, 2012
The Editor of Lupus Now® magazine needs your help with the Summer 2012 issue!
Unusual jobs: For our cover story we are looking for men with lupus who will talk about how they balance their out-of-the-ordinary job with the challenges of lupus. If that description fits you, write to us at lupusnow@lupus.org, with "unusual" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Play: Do you still get silly and play the way you did as a child? We’re going to write about the importance of playfulness, and how acting like a kid again can benefit your health. If you know how to unwind and how not to act your age, write to us at lupusnow@lupus.org, with "play" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Spirituality: Has a sense of spirituality helped you on your lupus journey? If you have some suggestions for other readers, write to us at lupusnow@lupus.org, with "spirit" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Skin: Symptoms of cutaneous lupus can range from rashes to lesions, causing scarring, changes in pigment, and more. If you have experienced skin involvement due to lupus and you can talk about treatments that have helped—whether from medication or a procedure—write to us at lupusnow@lupus.org, with "skin" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
My View: Maybe nothing comes more naturally than daydreaming about summertime during the chill of winter. Send a description of your ideal summer vacation, in 30 words or less, to lupusnow@lupus.org, with "vacation" in the subject line. We’ll print as many as we can in the Summer issue, and post the rest online at lupusnow.org.
Play: Do you still get silly and play the way you did as a child? We’re going to write about the importance of playfulness, and how acting like a kid again can benefit your health. If you know how to unwind and how not to act your age, write to us at lupusnow@lupus.org, with "play" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Spirituality: Has a sense of spirituality helped you on your lupus journey? If you have some suggestions for other readers, write to us at lupusnow@lupus.org, with "spirit" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
Skin: Symptoms of cutaneous lupus can range from rashes to lesions, causing scarring, changes in pigment, and more. If you have experienced skin involvement due to lupus and you can talk about treatments that have helped—whether from medication or a procedure—write to us at lupusnow@lupus.org, with "skin" in the subject line. Please include a little bit about your life with lupus, along with your name, location, and telephone number.
My View: Maybe nothing comes more naturally than daydreaming about summertime during the chill of winter. Send a description of your ideal summer vacation, in 30 words or less, to lupusnow@lupus.org, with "vacation" in the subject line. We’ll print as many as we can in the Summer issue, and post the rest online at lupusnow.org.
October 21, 2011
Tell your story: hair loss, music therapy, and lupus and lungs
Planning for the Spring 2012 issue of Lupus Now magazine is underway, and we need your help! Topics will include how to cope with hair loss, the healing power of music, and the effects of lupus on the lungs.
If you have experienced hair loss due to lupus or lupus medications, we would like to hear from you. We also are seeking hairdressers familiar with this effect of lupus, so if your hairdresser has some innovative ways to help with hair loss, let us know! Send your name, contact information, the contact information for your hairdresser (with his or her permission), and a few lines about your lupus hair loss to lupusnow@lupus.org, with “Hair” in the subject line.
Have you ever used music therapy for lupus-related symptoms and/or stress relief? If you have, we want to hear from you. Please send your name, contact information, and a few lines about how you have used music as a therapy to lupusnow@lupus.org, with “Music” in the subject line.
If you have experienced inflammation within your lungs (pneumonitis) or of the lining around your lungs (pleuritis), or any other pulmonary complications of lupus, we would like to hear from you. Please send your name, contact information, and a few lines about your lupus to lupusnow@lupus.org, with “Lungs” in the subject line.
If you have experienced hair loss due to lupus or lupus medications, we would like to hear from you. We also are seeking hairdressers familiar with this effect of lupus, so if your hairdresser has some innovative ways to help with hair loss, let us know! Send your name, contact information, the contact information for your hairdresser (with his or her permission), and a few lines about your lupus hair loss to lupusnow@lupus.org, with “Hair” in the subject line.
Have you ever used music therapy for lupus-related symptoms and/or stress relief? If you have, we want to hear from you. Please send your name, contact information, and a few lines about how you have used music as a therapy to lupusnow@lupus.org, with “Music” in the subject line.
If you have experienced inflammation within your lungs (pneumonitis) or of the lining around your lungs (pleuritis), or any other pulmonary complications of lupus, we would like to hear from you. Please send your name, contact information, and a few lines about your lupus to lupusnow@lupus.org, with “Lungs” in the subject line.
October 07, 2011
Lupus Now Magazine: Fall 2011 Preview
The fall issue of Lupus Now will be mailing soon! Check out our editor-in-chief's preview of the issue and if you're not a subscriber, please visit www.lupusnow.org to sign up.
If you move often because of your or your spouse’s job, or because of military reassignments, you will need to plan ahead for your medical needs in a new location. Our “Big Move” Wellness article gives tips on how to make this process easier.
It’s crucial for your lupus health care providers to communicate with one another—and with you. In “Connect the Dots,” a variety of lupus specialists share their thoughts on the importance of coordinated health care.
In a comprehensive wellness program, nutrition plays a key role. We are so impressed with one young woman, Jessica Goldman, who has a nickname that defines her own personal journey with lupus. Find out how her decisions to change her diet have touched many others, in our cover story.
Children with lupus tend to miss a lot of school. And every day they miss puts them at risk for falling behind the rest of the class. Our feature on Individualized Education Plans and 504 Plans explains how these two important programs can assure that children with lupus achieve their educational goals.
In “Helping Hands” we interviewed four remarkable individuals who share the ups and downs of being a caregiver. Whether you care for a parent, child, or spouse with lupus, we have information you’ll want to know.
Does the cold weather make you want to hibernate? Rejuvenate instead, with our “Out of Hibernation” tips for staying active in the winter season.
The LFA’s national research grant program has announced the recipients of the 2011-2012 program. Read about the recipients and their projects in Foundation News.
If you move often because of your or your spouse’s job, or because of military reassignments, you will need to plan ahead for your medical needs in a new location. Our “Big Move” Wellness article gives tips on how to make this process easier.
It’s crucial for your lupus health care providers to communicate with one another—and with you. In “Connect the Dots,” a variety of lupus specialists share their thoughts on the importance of coordinated health care.
In a comprehensive wellness program, nutrition plays a key role. We are so impressed with one young woman, Jessica Goldman, who has a nickname that defines her own personal journey with lupus. Find out how her decisions to change her diet have touched many others, in our cover story.
Children with lupus tend to miss a lot of school. And every day they miss puts them at risk for falling behind the rest of the class. Our feature on Individualized Education Plans and 504 Plans explains how these two important programs can assure that children with lupus achieve their educational goals.
In “Helping Hands” we interviewed four remarkable individuals who share the ups and downs of being a caregiver. Whether you care for a parent, child, or spouse with lupus, we have information you’ll want to know.
Does the cold weather make you want to hibernate? Rejuvenate instead, with our “Out of Hibernation” tips for staying active in the winter season.
The LFA’s national research grant program has announced the recipients of the 2011-2012 program. Read about the recipients and their projects in Foundation News.
June 20, 2011
Lupus Now Editor looking for people with lupus to help with the upcoming Fall/Winter issue of the magazine.
Have you moved a lot because of the military or for other reasons? If so we would like to talk to you about how you plan ahead for your medical needs in a new place. Your tips and strategies will provide valuable suggestions to those new to lupus. Please send a brief note with contact information to lupusnow@lupus.org, with Moves in the Subject line.
Have you ever used the Job Accommodation Network or helped create an IEP (Individualized Education Plan) or 504 Plan for your child with lupus? If so, we would like to talk to you about how these safety nets helped you or your family. Please send a brief note with contact information to lupusnow@lupus.org, with Net in the Subject line.
Do you remember what it was like to switch your lupus health care, or your child’s lupus health care, from a pediatric provider/clinic to an adult provider/clinic? If so, we would like to talk to you about the transition process. Your tips and strategies will provide valuable suggestions to young people preparing for this change in provider care. Please send a brief note with contact information to lupusnow@lupus.org, with Switch in the Subject line.
Have you ever used the Job Accommodation Network or helped create an IEP (Individualized Education Plan) or 504 Plan for your child with lupus? If so, we would like to talk to you about how these safety nets helped you or your family. Please send a brief note with contact information to lupusnow@lupus.org, with Net in the Subject line.
Do you remember what it was like to switch your lupus health care, or your child’s lupus health care, from a pediatric provider/clinic to an adult provider/clinic? If so, we would like to talk to you about the transition process. Your tips and strategies will provide valuable suggestions to young people preparing for this change in provider care. Please send a brief note with contact information to lupusnow@lupus.org, with Switch in the Subject line.
June 13, 2011
Summer 2011 Lupus Now Preview
We may not know why certain environmental factors trigger lupus onset and disease flares, but it sure helps to know what they are. Our second feature, The Lupus Environment,” takes a look at how lupus is related to and affected by the natural world around us—and for some people, even by what they eat and drink.
One of the most potent lupus triggers is ultraviolet radiation. In “Sun Rules,” you’ll learn about sunblock labeling, the truth about tanning, how fluorescent lights can cause harm, and much more.
Lupus can also have a huge impact on the health of your mouth, teeth and gums. “Mouth Maintenance” offers advice on prevention and upkeep of one of your teeth and gums, as well as information on Sjogren’s syndrome, a condition that often occurs with lupus.
All this and much, much more will be coming to you in the mail soon, in the Summer issue of Lupus Now. Not a subscriber? Join a local LFA chapter, or subscribe online, at The Lupus Shop.
April 06, 2011
Lupus Now Spring 2011 Cover Story - Family Ties
As a member of the design team on the popular series Extreme Makeover: Home Edition, Eduardo Xol helps improve the lives of a family in need every week for ABC TV. Off camera, Xol, the eldest of three siblings in a close-knit Mexican-American family, is helping his sister, Monica Cajayon, cope with lupus. He not only provides an understanding ear and a strong shoulder, but also has put his landscaping talents to work by designing a relaxing Zen garden retreat in her backyard.
“We’ve always been there for each other, not only as brother and sister, but as friends, with moral support and understanding,” says Xol, who, at 45, is five years older than Cajayon. “There have been moments when she has felt awful, and like nobody really understands. She calls me, and I just allow her to vent.” In turn, he says, “She’s let me lean on her shoulder if need be. We’ve been close our whole lives. I think it comes from our parents and relatives who taught us how important family bonds are, and the love and respect we were taught from a very young age that reinforced our relationship. Friends can come and go, but family is always there for you if you nurture that relationship.”
Read more at Lupus Now Magazine.
“We’ve always been there for each other, not only as brother and sister, but as friends, with moral support and understanding,” says Xol, who, at 45, is five years older than Cajayon. “There have been moments when she has felt awful, and like nobody really understands. She calls me, and I just allow her to vent.” In turn, he says, “She’s let me lean on her shoulder if need be. We’ve been close our whole lives. I think it comes from our parents and relatives who taught us how important family bonds are, and the love and respect we were taught from a very young age that reinforced our relationship. Friends can come and go, but family is always there for you if you nurture that relationship.”
Read more at Lupus Now Magazine.
March 14, 2011
Lupus Now: Spring 2011 Issue Now Available Online
If the sneak peek we posted last month was not enough, you can now read pieces from the most recent issue of Lupus Now magazine online! Visit www.lupusnow.org to read the newest stories now!
February 11, 2011
Sneak Peek of the Spring 2011 Issue of Lupus Now
Here is a sneak peek of the Spring 2011 issue of the LFA's award-winning magazine, which will be mailed in early March. Don't receive the magazines? Subscribe today!
Celebrity alert! The wonderful Eduardo Xol, host of “Extreme Makeover: Home Edition,” and his sister, Monica, were gracious enough to brave the torrential rains in Los Angeles and pose for the cover photo! In our feature story, “Family Ties,” they talked about the changes lupus has made in Monica’s life, and how her family—and especially her big brother—help her cope.
Have you ever wished you could cut your healthcare costs? In “Cost Control” we offer tips and suggestions from experts and people with lupus about negotiating prices (yes, you can bargain with your doctors!), spend less for services and tests, and even save money on your prescriptions.
“The Inside Story” explains what “being fit” really means for your entire body. Discover how you can rebuild your body from the inside out.
Readers sent in beautiful Love Notes for our special Valentine’s Day tribute, “How Do I Love Thee?” Don’t miss these heartfelt tributes to deserving loved ones. P.S. They found out about the Editor’s request on the LFA Facebook page; if you haven’t already “friended” us, you’re missing out!
“Bone Health” has important clues about bone health in children and adults with lupus. Don’t miss it for advice on fending off weak bones and staying fracture-free for life.
“It’s Not All in Your Mind” takes you inside the doctor’s head for a few minutes—read it in the “Educating Your Doctor” column—all part of our efforts to help you communicate with your health care team.
Also, prepared to be impressed by the scope of lupus research being conducted around the world when you read our summary of 2010 scientific meeting of the American College of Rheumatology/Association of Rheumatology Health Professionals. Researchers around the world are committed to unraveling the mysteries of lupus; let’s give them a hand!
Celebrity alert! The wonderful Eduardo Xol, host of “Extreme Makeover: Home Edition,” and his sister, Monica, were gracious enough to brave the torrential rains in Los Angeles and pose for the cover photo! In our feature story, “Family Ties,” they talked about the changes lupus has made in Monica’s life, and how her family—and especially her big brother—help her cope.
Have you ever wished you could cut your healthcare costs? In “Cost Control” we offer tips and suggestions from experts and people with lupus about negotiating prices (yes, you can bargain with your doctors!), spend less for services and tests, and even save money on your prescriptions.
“The Inside Story” explains what “being fit” really means for your entire body. Discover how you can rebuild your body from the inside out.
Readers sent in beautiful Love Notes for our special Valentine’s Day tribute, “How Do I Love Thee?” Don’t miss these heartfelt tributes to deserving loved ones. P.S. They found out about the Editor’s request on the LFA Facebook page; if you haven’t already “friended” us, you’re missing out!
“Bone Health” has important clues about bone health in children and adults with lupus. Don’t miss it for advice on fending off weak bones and staying fracture-free for life.
“It’s Not All in Your Mind” takes you inside the doctor’s head for a few minutes—read it in the “Educating Your Doctor” column—all part of our efforts to help you communicate with your health care team.
Also, prepared to be impressed by the scope of lupus research being conducted around the world when you read our summary of 2010 scientific meeting of the American College of Rheumatology/Association of Rheumatology Health Professionals. Researchers around the world are committed to unraveling the mysteries of lupus; let’s give them a hand!
February 02, 2011
We want to interview YOU for the Summer 2011 Issue of Lupus Now!
The editor of Lupus Now magazine is seeking people with lupus who would like to take part in these upcoming articles for the Summer issue. Interviews are conducted by phone, with email follow-up. Your help is greatly appreciated, and you will receive copies of the magazine as a ‘thank-you’ gift.
Do you remember your first medication infusion? Your first kidney biopsy? Your first dialysis treatment? The first time you saw an adult rheumatologist, after being cared for in a pediatric office? This article will be about “The fear of firsts.” Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “Firsts” in the Subject line.
Do you think you know what event triggered your lupus? Do you know what can trigger a lupus flare for you? This article will be about the possible causes and environmental triggers of lupus. Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “Triggers” in the Subject line.
Have you ever experienced a flare from spending too much time outdoors? Did you go to tanning salons before you were diagnosed with lupus? Do you still use tanning beds? This article will be about sensitivity to ultraviolet rays and how this can affect lupus. Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “UV” in the Subject line.
Has your dentist or doctor ever told you that your mouth, teeth, and/or gum problems are lupus-related? Do you have tips on managing these problems? This article will be about oral complications and possible remedies. Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “Mouth” in the Subject line.
Do you remember your first medication infusion? Your first kidney biopsy? Your first dialysis treatment? The first time you saw an adult rheumatologist, after being cared for in a pediatric office? This article will be about “The fear of firsts.” Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “Firsts” in the Subject line.
Do you think you know what event triggered your lupus? Do you know what can trigger a lupus flare for you? This article will be about the possible causes and environmental triggers of lupus. Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “Triggers” in the Subject line.
Have you ever experienced a flare from spending too much time outdoors? Did you go to tanning salons before you were diagnosed with lupus? Do you still use tanning beds? This article will be about sensitivity to ultraviolet rays and how this can affect lupus. Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “UV” in the Subject line.
Has your dentist or doctor ever told you that your mouth, teeth, and/or gum problems are lupus-related? Do you have tips on managing these problems? This article will be about oral complications and possible remedies. Please send an email with information about yourself, including your name, email and phone number, to lupusnow@lupus.org, with “Mouth” in the Subject line.
November 03, 2010
Fall issue of Lupus Now magazine has arrived!
The new issue of LN begins with the Lupus Living section, where we offer encouragement and support to everyone who plans to make a New Year resolution to stop smoking. We also share suggestions on how to avoid colds and the flu this winter, and why it’s important to talk to your doctor before you start taking any dietary or herbal supplements.
In the Wellness section, we have information about the benefits of three popular low-impact movement workouts—tai chi, Pilates, and yoga—and when and how to take your medications. Timing really can matter!
The cover feature is about learning to take control of life’s challenges rather than allowing those things to control you. It’s not always easy to do, but we believe you will see great improvements in your life when you embrace this philosophy.
Do you know how keep your health insurance, if you have to stop working, or how to get coverage, despite having lupus as a pre-existing condition? Our second feature offers an overview of three important safety nets you can really use.
Our third feature takes a look at the state of pediatric lupus research today, and why it is crucial to understand all the ways that lupus affects the lives of children and adolescents.
Visit us online at www.lupusnow.org. If you don’t already receive the magazine, this is a great time to subscribe! Join your local LFA chapter, LUPUS FOUNDATION OF AMERICA - LFA Chapters or subscribe through the LFA online store, Lupus Foundation of America Storefront. We want you as part of the lupus community!
In the Wellness section, we have information about the benefits of three popular low-impact movement workouts—tai chi, Pilates, and yoga—and when and how to take your medications. Timing really can matter!
The cover feature is about learning to take control of life’s challenges rather than allowing those things to control you. It’s not always easy to do, but we believe you will see great improvements in your life when you embrace this philosophy.
Do you know how keep your health insurance, if you have to stop working, or how to get coverage, despite having lupus as a pre-existing condition? Our second feature offers an overview of three important safety nets you can really use.
Our third feature takes a look at the state of pediatric lupus research today, and why it is crucial to understand all the ways that lupus affects the lives of children and adolescents.
Visit us online at www.lupusnow.org. If you don’t already receive the magazine, this is a great time to subscribe! Join your local LFA chapter, LUPUS FOUNDATION OF AMERICA - LFA Chapters or subscribe through the LFA online store, Lupus Foundation of America Storefront. We want you as part of the lupus community!
October 20, 2010
Want to be in the Spring 2011 Issue of Lupus Now?
The Editor of Lupus Now magazine is seeking people with lupus to help with the Spring 2011 issue!
Love Notes: We want to honor your partner or spouse on Valentine’s Day! Send us a 50-word love note about how he or she has made a difference on your lupus journey. We will print as many as possible in the Spring issue (out in March) and post the rest online by Valentine’s Day. Send to lupusnow@lupus.org with “Love” in the subject line. Include your name and contact information. Your deadline is Friday, October 29.
In conjunction with a story on keeping fit, our My View question this time is: How do you stay motivated to exercise regularly? Send your 30-40 word comment to lupusnow@lupus.org with “Exercise” in the subject line. Include your name and city and state of residence. Your deadline is Monday, November 1.
Love Notes: We want to honor your partner or spouse on Valentine’s Day! Send us a 50-word love note about how he or she has made a difference on your lupus journey. We will print as many as possible in the Spring issue (out in March) and post the rest online by Valentine’s Day. Send to lupusnow@lupus.org with “Love” in the subject line. Include your name and contact information. Your deadline is Friday, October 29.
In conjunction with a story on keeping fit, our My View question this time is: How do you stay motivated to exercise regularly? Send your 30-40 word comment to lupusnow@lupus.org with “Exercise” in the subject line. Include your name and city and state of residence. Your deadline is Monday, November 1.
August 16, 2010
From the Archives of Lupus Now Magazine: So Long, Salt!
Picnics, grilling, and barbecue. Ah, the beloved staples of summertime. Yet with these seasonal traditions come many salty foods. From the ketchup, pickles, and American cheese you pile on your charcoal-grilled burger to the sodium-laden dips and chips served on the side, it's easy to load up on salt during warm-weather months.
Should you be concerned? Unfortunately, yes.
Read more about reducing sodium consumption on our Lupus Now website.
Should you be concerned? Unfortunately, yes.
Read more about reducing sodium consumption on our Lupus Now website.
August 09, 2010
Show and Tell - Jillian Bante's Story
From the Archives of Lupus Now Magazine - Spring 2009
In many ways, Jillian Bante is like any other college freshman. On her own for the first time at the University of Maryland in College Park, the Rochester Hills, MI, native is taking introductory math, government, English, writing, and philosophy classes. Like most of her fellow students, Bante is living on campus, making new friends, and enjoying her independence. But unlike most of her fellow students, Bante is nearly blind, the result of complications of lupus.
Now 18, Bante was diagnosed with lupus as a 13-year-old high school freshman, after living with juvenile rheumatoid arthritis for three years. In her young life, she has faced numerous hospitalizations and a high-risk stem cell transplant that substantially improved her health, but did not cure her immune disorders or fully restore her sight.
Continue reading at the Lupus Now website
In many ways, Jillian Bante is like any other college freshman. On her own for the first time at the University of Maryland in College Park, the Rochester Hills, MI, native is taking introductory math, government, English, writing, and philosophy classes. Like most of her fellow students, Bante is living on campus, making new friends, and enjoying her independence. But unlike most of her fellow students, Bante is nearly blind, the result of complications of lupus.
Now 18, Bante was diagnosed with lupus as a 13-year-old high school freshman, after living with juvenile rheumatoid arthritis for three years. In her young life, she has faced numerous hospitalizations and a high-risk stem cell transplant that substantially improved her health, but did not cure her immune disorders or fully restore her sight.
Continue reading at the Lupus Now website
July 14, 2010
Helpful Information for People with Lupus about Summer Vacations
This is the time of year that everyone likes to get away for a little rest and relaxation. But people with lupus have to take precautions to reduce the possibility of triggering a flare and preventing other complications. Here are three articles that may provide some helpful tips to have a safe and enjoyable trip.Vacation Inspiration
Traveling When You Have Lupus
July 12, 2010
Sleep Easy - Why Sleep Is Critical When You Have Lupus
The Summer issue of LFA's Lupus Now® magazine takes a close look at this important aspect of living better with lupus.Sleep deprivation can be harmful to the immune system. Research done through the National Institute of Neurological Disorders and Stroke has shown that neurons that control sleep interact closely with the immune system.
Learn more
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