Showing posts with label YouTube. Show all posts
Showing posts with label YouTube. Show all posts

February 23, 2010

Lupus Foundation of America Releases New Lupus Awareness Videos; Watch Kassie's Story -- A Father Shares His Loss

Good morning.

The Lupus Foundation of America (LFA) has created 4 new lupus awareness videos, where people who are living with lupus share their personal stories.

In this second video, Joe McMullin discusses the loss of his daughter Kassie, due to complications of lupus shortly after she had given birth to a son.

February 01, 2010

Lupus Foundation of America Releases New Lupus Awareness Videos; Watch the Lupus-Related Kidney Disease Video

Good morning.

The Lupus Foundation of America (LFA) has created 4 new lupus awareness videos, where people who are living with lupus share their personal stories.

In this first video, two people talk about their lupus-related kidney disease.

Baakari Wilder is a man living with lupus. He developed the disease while he was starring in a Broadway musical. Carla Vargas describes how she must undergo periodic chemotherapy treatments to manage the health effects of lupus nephritis.

March 25, 2009

Watch the Latest Lupus-Related Videos on LFA's YouTube Channel

Morning everyone.

Wanted to remind you that the Lupus Foundation of America (LFA) has its own lupus channel over on YouTube.com.

I encourage everyone to head over there and check out some of the LFA's public service announcements (PSAs), as well as our videos of lupus experts talking about the latest in science and research.

Let me share one with you.

Below is a recently made video called "Target Awareness." This video provides a brief overview of lupus and its symptoms and health effects, and an overview of some of the support services available from the Lupus Foundation of America.



And one of the great things about YouTube is ... if you are moved or inspired by a particular video, you can embed the HTML code on your own blog, or website. The more people who see these videos and understand the seriousness of lupus, the more the public's level of awareness is raised, which will translate into more funding for lupus-related research.

So feel free to bookmark the LFA's channel in YouTube, or better yet, subscribe to that page. I'll be featuring other videos in the coming weeks.

Until next time, Wick

February 20, 2009

Visit the Lupus Foundation of America's Lupus Channel on YouTube, and Watch the Latest PSAs and Research Videos

Morning everyone.

Wanted to share a great resource with you. The Lupus Foundation of America (LFA) has its own lupus channel over on YouTube.com.

I encourage everyone to head over there and check out some of the LFA's public service announcements (PSAs), as well as our videos of lupus experts talking about the latest in science and research.

Let me share one with you.

Below is a recently made video called "Biomarkers for Heart Disease in African American Women with Lupus." In it, Dr. James C. Oates, Associate Professor of Medicine at the Medical University of South Carolina, discusses his LFA-supported research study on Biomarkers of Reactive Nitrogen and Oxygen Stress as Risk Factors for Cardiovascular Disease in African Americans with Lupus.

Cardiovascular disease has become one of the leading causes of disability and mortality among people with lupus. The LFA is leading efforts to address study this serious complication of lupus and find ways to treat or prevent CVD in people with lupus.



And one of the great things about YouTube is ... if you are moved or inspired by a particular video, you can embed the HTML code on your own blog, or website. The more people who see these videos and understand the seriousness of lupus, the more the public's level of awareness is raised, which will translate into more funding for lupus-related research.

So feel free to bookmark the LFA's channel in YouTube, or better yet, subscribe to that page. I'll be featuring other videos in the coming weeks.

Wishing you all a wonderful weekend.

Until next time, Wick

February 11, 2009

"Zero in 50 ... What?!"

In the January 2009 Lupus Living enewsletter, we challenged you to share with us your ideas for trying to raise awareness about lupus, as part of the "Zero in 50" campaign.

The LFA received an impassioned video from "the LEEP Chat Channel," a young woman who is living with lupus. After reading that there had been no new drugs in 50 years, she was compelled to respond, and take action. Watch her video.



What a great video!

So that got us thinking. Are there any other budding filmmakers / videographers out there? If so, we'd love to hear from you. Send us links to your video clips, and/or email your thoughts to us at 50years@lupus.org.

You can also join the discussion on our message boards and give us your suggestions.

July 31, 2008

Lupus Foundation of America: Visit Us Around the Web

The Lupus Foundation of America continues to expand its presence on the Web. Below is a listing of new areas of outreach. Come join us in these locations.

CaringBridge
Now you can stay connected with your personal and private journal, guestbook and photo album -- all in one place -- using CaringBridge’s personalized website design.

eBay's Giving Works Program
Are you a frequent buyer / seller on eBay? Do you want to help raise money on behalf of lupus research while winning those auctions? Learn more here.
http://www.missionfish.org/NPMMF/nphomepage.jsp?NP_ID=11401

Facebook.com
You do need to have a Facebook account to view this page. It takes a few moments to create one. If you already have an account, come join the "Lupus Foundation of America, Inc." group.
http://www.facebook.com/group.php?gid=2300574157

MySpace.com
http://www.myspace.com/lupusfoundationofamerica

YouTube.com
The Lupus Foundation of America's public service announcements (PSAs) have been posted to YouTube. Take a look.
http://www.youtube.com/user/LupusFoundation