Jenny's Notebook - An Autumn Gift

Since last time I wrote my blog, the country has endured an earthquake that shook Virginia and the surrounding region, a hurricane that tore its way up the East Coast, and wildfires that are still burning in Central Texas. For any of you whose lives have been disrupted by these circumstances, we hope you are back on your feet soon.

On September 11 our nation also remembered our losses of 10 years ago, in New York and Pennsylvania and Washington, DC. If we are stronger today, it is due to the sacrifices of those who left us on that day—and all those who have promoted peace and justice around the world ever since. You remain in our thoughts.

Autumn happens to be my favorite time of the year—could that be because I have a birthday coming up in October? A lady never reveals her age, but since I still often feel (not to say act!) like a child, that’s probably the reason I love the fall so much.

Now, every year I treat myself to something special on my birthday—sometimes the opera to celebrate my inner diva; other times the Washington International Horse Show to celebrate my inner cowgirl. Last year I traveled down to Austin so my mom and I could celebrate our birthdays together (call it a guilt trip!).

But this year’s gift is the best one of all, because it represents a celebration of my entire self. It’s the gift of fitness! That’s right—I am recommitting to my own health. How’s that for a present?! Although I am doing well with my lupus, the passing years take with them bone strength and range of motion and good balance, and I must fight back.

But I’m not waiting until October: Last night after work I headed for the gym where I spent 30 minutes huffing and puffing on the elliptical training machine, wondering if I was really up for the rigors of cross-country skiing.

Without a doubt the key is to listen to your favorite rowdy music while you toil! After the work-out I stretched and then weighed myself, and back at the Hobbit Hole (my beneath-the-stairs dwelling) I recorded my waist and hips measurements. (O, the horror!) Diet has to be adjusted too (get away, you sugary snacks!); more on that next time.

Here I must confess that, contrary to my usual advice, I did not first talk with my physician about beginning an exercise program that puts demands on joints, muscles, and a rather inactive cardiovascular system. This Was Wrong. Say it after me!

However, as part of my Healthy Recommitment, I made an appointment with a new primary care provider for a complete physical, and to make sure I am up for these fitness efforts. I can’t recall ever having a complete physical. When you have lupus, sometimes it feels like all you ever do is go to doctor appointments, but they’re always specialists. It’s a good idea to also have the Big Picture. Then I’m going to go get that DXA bone mass test thingy. I’ve been putting it off for no particular reason. And third on the list is a flu shot. Now, I hate needles, really hate them, but I don’t care to risk a lupus flare, right? 

Lifting weights is on tonight’s agenda. Wish me luck!

On another note: September is National Pain Awareness Month. The American Pain Foundation Action Network is asking people to join the “If I Lived in a World with Less Pain, I Could...” campaign to raise awareness, Find out more at painfoundation.org/. Also, Rest Ministries is sponsoring National Invisible Chronic Illness Awareness Week. Their Web site at http://invisibleillnessweek.com/ features a number of opportunities to participate.

May your autumn be pain-free, full of activities you enjoy, and spent in the company of loved ones who make you laugh.

I remain your faithful, fitness-seeking correspondent,
Jenny

15 Questions with Mrs. Cortese-Shipley - Exercising and Staying Fit with Lupus

For May, the LFA invited you to join us for the 15 questions topic "Exercising and Staying Fit with Lupus" with Mrs. Cortese-Shipley from The Cooper Institute. This was your opportunity to ask questions and learn from an expert.

Read her answers now.

Meet Sean Hanrahan, Your Expert on "Staying Active Despite Lupus," for the May 2010 Q&A

Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity with the knowledge and support of their doctor. For May, the LFA invites you to join us for the "Staying Active Despite Lupus" Q&A with guest expert Sean Hanrahan. This is your opportunity to ask questions and learn from an expert.

Learn more about the "Staying Active Despite Lupus" Q&A.

Submit your questions by May 7.

Read previous transcripts here.

Tips for Starting -- and Sticking to -- an Exercise Routine

Almost everywhere you look, there are signs telling you to exercise -- from infomercials featuring swimsuit models to newspaper articles about the risks of being a couch potato.

Sorting through the myriad of exercise options can be daunting for anyone. But it can be especially daunting for people with systemic lupus -- many of whom experience joint pain, fatigue, fevers and other symptoms.

For all the hype, there is solid evidence that our bodies need exercise to thrive.

Here’s some advice on integrating exercise successfully into your everyday life.

Taken from the Lupus Now archive

Store Spotlight: "The Right Moves for Lupus Fitness" DVD

If lupus has you on the sidelines rather than in the middle of the action, this new low-impact exercise program, designed specifically for people with lupus, may be "just right" for you.

Guided by a licensed A.C.E. instructor who also has lupus, this DVD offers a gentle fitness routine that you can practice in the comfort of your own home. The goal is not to become a super model but to get moving -- and to improve your well-being in the process.

Buy the exercise DVD.