Health Educator's Perspective: The positive effects of true wellness with lupus

Dawn Isherwood, Health Educator

We hope everyone is having a great summer and enjoying time outside with friends and family.

Even with the best medical technology available, true wellness must come from within. Genetics, environmental factors and hormonal factors can all be influenced by our everyday lifestyle choices. As we all know, current medication therapies for lupus can be difficult and may cause nausea, weight gain or loss as well as possible bone thinning. Learning to complement your treatment with healthy lifestyle choices may help decrease symptoms and may lead to minimizing the need for difficult therapies.

So why are lifestyle factors so important when treating the whole person who has been diagnosed with lupus? Lupus is a disease of the immune system which can result in inflammation and the pain and symptoms associated with it. The immune system is very sensitive to lifestyle factors and responds very favorable to healthier choices particularly when it comes to diet, exercise and stress management.

Eating for health: While there is no special diet for lupus, it is recommended that those with lupus should try to eat a nutritious, well-balanced and varied diet that contains plenty of fresh fruits and vegetables, whole grains (barley, brown rice, flaxseed, whole wheat pasta), moderate amounts of meats, poultry, and oily fish (salmon, trout, sardines), as fish oil has been found to help reduce inflammation. Try to avoid processed foods, like flour and high sugar items.

Let’s get moving: I encourage you to exercise regularly or engage in some kind of movement. Most people with lupus can take part in some form of activity. Making exercise a regular part of your life has been shown to decrease heart and joint issues and control weight gain caused by the use of corticosteroids. Studies indicate that exercise can be as effective as anti-depressant medications in controlling depression and anxiety that are often associated with chronic illness such as lupus.

Inflammation from lupus in the muscles, tendons and ligaments can lead to stiffness, pain and decreased mobility. Non-weight bearing exercises such as swimming, biking, tai chi and yoga can help decrease pain and stiffness, increase cardiovascular health and decrease stress and anxiety. Weight bearing exercise such as the elliptical machine, treadmill, walking and light weight lifting can help maintain muscle strength and bone density.

STRESS: There is no getting around the fact that there is stress in life and living with a chronic illness like lupus only piles on to those everyday stressors. Managing stress can have a significant impact your life and your lupus and improve your overall physical and emotional health.

Some simple ways to start are to identify the stressors in your life. Remember that there are things in your life that you can control and things that you cannot. Place your energy in those things you can control such as asking for help, learning to say no when you have the choice (don’t let those around you make you feel bad about saying no), listen to your body and rest when you need to, and don’t expect too much from yourself all the time (give yourself an emotional break). If your feel really overwhelmed, you may want to talk to your doctor or a counselor.

At the Lupus Foundation of America, we encourage everyone to take a look at their overall health. True wellness has been shown to have a very positive impact on lupus, along with your overall well-being. Always remember to check with your doctor before making any changes to your diet or exercise routines. For more information or if you have any questions, we invite you to call one of our health educators. You can also visit the Lupus Foundation of America’s website at lupus.org to learn more.

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Dawn E. Isherwood, RN, BSN, is Health Educator for the Lupus Foundation of America. Dawn can be reached at 800-558-0121 or by filling out this contact form.

A Health Educator's Perspective: Sun Sensitivity and Lupus

Dawn Isherwood, RN, BSN

By Dawn E. Isherwood, RN, BSN,
Health Educator, Lupus Foundation of America

We hope everyone is enjoying the start of the spring season and the warmer weather!

Each year, as the flowers start to bloom and the weather gets warmer across the country, calls into the Lupus Foundation of America significantly increase with questions about light sensitivity. Two-thirds of people with lupus have increased sensitivity to ultraviolet rays, either from sunlight or from artificial inside light, such as fluorescent light -- or both. While we all know it is not possible, especially this time of year, to avoid ultraviolet light all together, for those living with lupus, it is important to protect yourself from these strong rays.

Photosensitivity or abnormal light sensitivity is a major symptom of the cruel and mysterious autoimmune disease we call lupus. If you are living with lupus, exposure to the sun can cause skin rashes. Beyond skin rashes that can develop, exposure to the sun, as well as artificial inside light, can cause increased disease activity with symptoms such as joint pain, weakness, fatigue and fever. This is not exactly the reaction we all want when enjoying the warm sun.

So why do people with lupus have this reaction to ultraviolet rays? Normally skin and other cells that are sufficiently damaged by ultraviolet light die through a process known as programmed cell death, or "apoptosis." The body then gets rid of the dead cells. Unfortunately for those who live with this devastating disease, apoptosis in the skin seems to occur more often than it should, which in turn leads to more inflammation and other side effects. People without lupus do not typically experience this reaction -- though too much exposure to ultraviolet light is not good for anyone.

Staying inside is not the answer -- you should all enjoy this weather. While it is difficult to avoid ultraviolet light all together, there are ways you can protect yourself. Here are some tips that I share with folks:

Avoid Mid-Day Sun
Whatever the weather, avoidance of tropical sun, or the sun in the middle of the day, is the first line of defense. This action alone may reduce the need for other treatments. Of course, avoidance of the tropical or mid-day sun may not be practical in all situations or for all people. If you must be out in the sun, broad-brimmed hats and tightly-woven, loose-fitting clothing with long sleeves and long pants are very effective.

Use Sunscreens
The use of sunscreens form the next and best-known part of sun protection. These preparations are either chemicals which absorb UV light, or pigments such as titanium dioxide or zinc oxide which scatter it. According to Dr. Andrew Franks, “right now, by far the best sunscreen on the market today is Mexoryl™, which blocks both UVA-1 & 2 rays in addition to UVB rays. There is more than one brand, so be sure the ingredient list includes Mexoryl. Products with the Helioplex® compound are close to Mexoryl in effectiveness and also protect against UVA-1 and 2 rays.”


Talk To Your Healthcare Provider or Pharmacist about Your Medications
Some medications may also increase the effects of the ultraviolet rays on a person's body. Antibiotics such as tetracycline or sulfonamides, some diuretics as well other medications have an increased potential of developing "phototoxic" reactions, such as easy sun-burning. If you are taking these "photosensitizing" medications, you will need extra protection against sunlight. Ask your doctor or pharmacist if any of your current or new medications might make you extra-sensitive to the sun.

Avoid Other Sources of UV Light
Sources of UV light other than sunlight can also cause skin problems in lupus. Thus, photosensitivity has been reported from fluorescent tube lights, which mainly emit UVA with small amounts of UVB, and from photocopiers, which emit mainly UVA and visible light. Fluorescent tubes can be fitted with acrylic shields which eliminate UVB emission, while photocopiers should not be used with the top cover up.

Install Light Shields on Windows
Finally, because car and house windows protect just against UVB, not UVA, and clouds only a little against either one, sun protection should not be limited just to sunny days. For windows, effective UV-blocking films are commercially available.

At the Lupus Foundation of America, we want everyone to enjoy the warm months ahead, and hope you find these tips helpful. We invite you to call one of our health educators if you have any questions. You can also visit the Lupus Foundation of America’s website at lupus.org to learn more about photosensitivity and lupus.

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Dawn E. Isherwood, RN, BSN, is Health Educator for the Lupus Foundation of America. Dawn can be reached at 800-558-0121 or by filling out this contact form.