San Francisco, CA
December 1, 2012
University of California, San Francisco Millberry Union Event and Meeting Center
Los Angeles, CA
January 12, 2013
JW Marriott
Denver, CO
January 26, 2013
Denver Marriott City Center
Dallas, TX
February 9, 2013
Dallas Marriott Suites Medical/Market Center
Raleigh, NC
March 2, 2013
Raleigh Marriott City Center
Richmond, VA
March 16, 2013
Virginia Commonwealth University
Cincinnati, OH
April 6, 2013
Kingsgate Marriott Conference Center at the University of Cincinnati
Detroit, MI
April 13, 2013
Westin Book Cadillac Detroit
Boston, MA
April 27, 2013
TBD
New York City, NY
May 18, 2013
TBD
Can’t make the education event? Visit cruelmystery.org to find out more about the Help Us Solve the Cruel Mystery™ National Tour, and how you can help raise awareness, rally support, and promote a greater understanding of lupus.
30 comments:
I live in Al. Why isn't there one schedule for there? I have been living with this uncurable nightmare for a long time and nothing seems to help stop the pain you're in or the damage it does to your life. My rheumatologist has basically just given up on putting me on meds because he has tried some of everything and it doesn't help, so what I do is pray day in and day out that god will continue to give me strength
@Anonymous: Unfortunately, we are going to only these 10 cities at this time. However, we will definitely let you know if our schedules change in any way! In addition, our Mid-South Chapter serves AL. Please check them out at www.lupusmidsouth.org to get involved in their support programs and services. Please let me know if you have any other questions.
I live in Spokane WA....why isn't there one closer to me?? At least in Seattle? I would love to have this info. What about doing an online video of the event so more of us can see it????
What about Upstate New York? It seems that NYC is the only place that gets any worthwhile lectures or anything ! I personally know at least 30 people with Lupus that live in Dutchess County. There are many ,many more according to the Docs that I have spoke with! Including myself and my 8 year old cousin. Maybe there are "clusters"
Do that midsouth chapter covers Arkansas too?
@Joyful875: we have a chapter that serves the PNW area that also offer support programs and services. Please find them online at www.lupuspnw.org. We will eventually post key points from these events and will let you know when they are updated.
@Anonymous 2: we have a chapter that serves Arkansas. Their website is http://www.lupus-arkansas.com.
Jacksonville, Fl has no representation and no outreach that I am aware of.I notice that the tour isn't coming remotely near Florida. Is there a particular reason?
Will there be a chapter in Az soon?
@Emily: We are unable to visit Florida with the tour at this time but we will be sure to keep you updated if any of that changes.
@Anonymous 3: We do have an office in Phoenix, AZ. If you like more information, please send us an email at info@Lupus.org and we'll be sure to pass it on.
I live in ms, and we have nothing of this major chapter down this way at all ... its alot OF us suffering with this disease ....we need a cure!!!!!
what chapter covers chicago it's not on the list. :0( really looking for something like this for my husband and I to attend. Recently diagnosed 2 months ago
@Anonymous 5: Our Illinois Chapter serves Chicago. Visit them online at www.lupusil.org.
Would like to see one in San Antonio...it seems we get looked over a lot..seems everything is Dallas or in Corpus Christie. Not sure if it has to be that the San Antonio chapter has all there "stuff " together though. But would love to be able to attend.
Why are not doing a tour near the south. Atlanta would be good then people from Florida and Alabama , Mississippi could all join in.
I want to travel to the nearest destination to attend. How do I RSVP? Thank you for offering such a great FREE seminar. =)
Me too! Dallas is too far
I live in Alexandria, Louisiana what about meeeee:-(
I feel for you and understand your pain. I refuse to take drugs because. They didn't make me feel better. I survive on vitamins and an over abundance of Alieve and take it one day at a time.
I stopped meds years ago as I felt like they were killing me. I was told by my rheumatologist not to take vitamins as my system didn't need to work any better. I stopped them and it helped a lot. Omega 3 work well also.For me, sleep is critical.
Why are is there no support system in Jacksonville, FL. I can't even find any Lupus Organization that handles Jacksonville, FL
How do I register?
Why aren't you including the pacific north west (seatyle/portland)? There is a huge Lupus population here.
Anonymous 11/30/2012 8:53 AM: Click on the city to register. It will take you to a registration link.
For everyone who is interested in us coming to their city: Thank you so much for your enthusiasm! Unfortunately, at this time, resources and time limit the number of cites the tour can accommodate in any one year. We hope to continue the program in subsequent years and bring it to additional cities as funding becomes available. We will update you if and when the schedule is updated. In the mean time, please visit www.lupus.org/chapters to find your local chapter. They offer support programs, services, support groups, Walks, and more.
What about Pittsburgh? There is a Lupus Center for Excellence here, but no local chapter.
I won't say I understand or that it'll be alright because having Lupus myself for years now I know its the LAST thing someone wants to hear. It only makes you angry, and want to tell the person "How do they know its going to b ok?" They dont know what your going through so they cant really feel where your coming from. Ive had Lupus since 15 and am now 23. Yes I may or may not b younger then you, but I am VERY experienced n knowledgeable on the subject. If u allow your mind to think that Lupus has won then your body will reflect such. Dont EVER take any doctors words and let that be your only hope because they can n are OFTEN wrong. They get info out of books n studies just like you can so u have to read n research things for yourself. Never just think what they say is it. Meds r very important, excercise, n your diet. Prednisone is the #1 think used to keep lupus under control. It is a steroid so it does increase your appitate and may cause weight gain. It also can make bones dense so u take calcium to keep your bones, joints, n teeth strong. Decrease your sodium intake which causes you to retain fluid n can raise your blood pressure which can strengthen lupus n allow it to harm your organs n kidney usually are their 1st choice as mine were. My kidneys quit at age 19and I was put on dialysis. So meds diet excercise stayin active is very important. So neva give up n pray n HOD should always be your foundation n everything. Mind OVER matter. If u act sick, then you will be. U can ask me anything u would like to know. Yes I had a rhu n my lupus was so n check I had no more need for her. Rash only came in the initional diagnoses. Butterfly Lupus
The San Antonio chapter to me is worthless!! I can't tell you how many times I have tried calling...left messages with absolutely no response...or if they DO answer the phone they are very rude and we always manage to get "disconnected " and emails do not get answered! ! So some of us are still left with no support!
Please come to Phoenix! We are one of the largest cities....larger than Denver!!!! We need help here. Rheumatologists in Denver know much more about lupus than rheumatologists do in Arizona.
Please consider Phoenix! It's larger than Denver and there isn't much lupus awareness among rheumatologists here. I used to live in Denver...they have very informed rheumatologists.
Carolyn Pace in Tempe is the BEST Rheumatologist I've ever had. I found her after I drove 1,000 miles back and forth to Mayo. They told me I needed a Psychiatrist! She told me she didn't care about the labs and diagnosed me with SLE and Sjogren's. With her treatment, I went into remission for over three years. I moved from Gilbert to South Carolina and relapsed two years ago. I've seen several "specialists", including someone that LFA has had on their question section. I have been unable to practice medicine since 11/10. Please, Diane, if you are able to, see Dr Pace....I wish I could!
Post a Comment