March 16, 2009

Guest Blogger Shares His 2009 Lupus Foundation of America Advocacy Day Experience

"I feel the Lupus Foundation of America's Advocacy Day 2009 was the best ever. This was the result of many factors. The training we received prepared us for answering any questions that might be asked of us by members of Congress, or their legislative assistants.

"The different speakers, including Dr. Susan Manzi from the Lupus Center of Excellence in Pittsburgh, and Sandra C. Raymond, President & CEO of the Lupus Foundation of America in Washington DC, did an outstanding job of not only motivating us, but also explaining what our priorities were, and why we need additional funding.

"Each member of our group had a role to play that brought everything together. I really feel that all the training enabled us to be effective advocates. The many legislative assistants we spoke to seemed very positive and understanding. All in all, it was a tremendous experience.

"I want to thank everyone who put this fantastic program together. Last but not least, I want to thank members of the Lupus Foundation of America, Illinois Chapter. I really enjoyed working with Mary Dollear, Paul Sakol, and Sonya Loynachan."

Photo: Bruce Soehnlin, Lupus Advocate, Lupus Foundation of America, Missouri Chapter

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