tag:blogger.com,1999:blog-2595844535299775193.post517774324856464145..comments2023-10-24T06:56:13.050-04:00Comments on Road to a Lupus Cure: Health Educator's Perspective: The positive effects of true wellness with lupusSophie - LFAhttp://www.blogger.com/profile/04688789367974778219noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2595844535299775193.post-7070068349134506242013-08-16T00:47:00.192-04:002013-08-16T00:47:00.192-04:00Count me in as agreeing with Anonymous too! That&#...Count me in as agreeing with Anonymous too! That's the problem...the article sounds as useful for john q. Public as it does for anyone with lupus. Majority of ads and commercials are generic. I want commercials and public education to show the true dirty on Systemic Lupus! No more powder puffing this terrible disease!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-90898160223328119172013-08-09T10:27:52.268-04:002013-08-09T10:27:52.268-04:00I agree with anonymous. I have problems with Sjogr...I agree with anonymous. I have problems with Sjogrens as well as Lupus and I have blood issues and stomach issues. I can not swallow what is healthy, everything sticks in my throat. I cannot tolerate raw veggies and the healthy foods you are supposed to load up on. I can not run I can hardly walk and as far as asking for help there is no one in my life who wants to listen to those kind of requests except my husband of 53 years who is currently on oxygen 24/7. My stomach problems,my legs with a permanent blood clot & blood thinner issues all these things are preventing me from taking most meds that would help. Exercise other then keeping my house, trying to get to 7 docs offices, bi monthly blood work and just trying to get up in the morning are about all I can do. This lady with her sunny approach is fine but I really dont think she "gets it! She once again makes me feel guilty and like what most people seem to see when they look at you a fat lazy woman who doesnt take care of herself. I am glad for her that her Lupus has not reached the point where it causes her the pain mine does, She does not lose sleep because the pain is so bad in her legs that she can not sleep and just getting to the bathroom is more than she can do at this point.I am always in pain,a day does not go by that I am not in pain and now it affects my legs.So I agree completely with Anonymous. This piece once again makes the Lupus patient feel guilty,guilty for not being able to help themselves with the natural approach to all their ills.I doubt her Lupus has reached a stage where she really "gets it"Anonymoushttps://www.blogger.com/profile/02515762194188241280noreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-24225864149646317912013-08-09T09:14:10.130-04:002013-08-09T09:14:10.130-04:00I can understand the last post since so many peopl...I can understand the last post since so many people judge us by our appearance already. Although I look bad right now, when first diagnosed I did not look like I had anything bad wrong. I tried to do all the right things and still exercise at least 4 out of 7 days a week. It is frustrating since there is nothing one can do that will stop this disease from going to my kidneys as it has already done. That is the nature of the disease. There are also times it does not matter how much one rests, it will do no good. I do not want to sound negative but some of us have severe problems. parkerburke10noreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-2731817530581509172013-08-08T19:44:30.700-04:002013-08-08T19:44:30.700-04:00This post does a disservice to many lupus sufferer...This post does a disservice to many lupus sufferers. It has shades of "blaming the victim." Sometimes you can do everything in your power to fight and do everything "right," but it doesn't help. The disease will have its way with you. Mostly, this blog post only serves to give others without lupus a reason to minimize the disease. So tired of hearing, "If you just did this, that or the other, you'd be cured, get better, have less pain, etc." I "unliked" the Lupus Foundation's Facebook page as a result of this post. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-7984996562353251012013-08-08T16:39:16.823-04:002013-08-08T16:39:16.823-04:00Thanks Dawn, timely article for my family.Thanks Dawn, timely article for my family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-31481808267650040822013-08-08T16:28:47.278-04:002013-08-08T16:28:47.278-04:00Learning to ask for help....so hard for me to do.Learning to ask for help....so hard for me to do.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-18503630239643161822013-08-07T05:23:41.192-04:002013-08-07T05:23:41.192-04:00Thank you Dawn. It is easy to stray from exercise...Thank you Dawn. It is easy to stray from exercise when the heat is 'on'. I have to remind myself to look for opportunities. Great article<br />CassandraMissCasshttps://www.blogger.com/profile/05030159929779813316noreply@blogger.com