tag:blogger.com,1999:blog-2595844535299775193.post4291980636589173644..comments2023-10-24T06:56:13.050-04:00Comments on Road to a Lupus Cure: Fatigue and the HolidaysSophie - LFAhttp://www.blogger.com/profile/04688789367974778219noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2595844535299775193.post-16063727078789556192010-12-02T22:41:31.997-05:002010-12-02T22:41:31.997-05:00I finally realized that I had to start taking it e...I finally realized that I had to start taking it easy and that I am not the same person I was before being diagnois in 2003 with lupus. My realization came to me when I was hospitalized in October for the first time in 8 years. I finally accepted the fact that when I get fatigued to stop and take a long rest and whatever had to be done go a slow and steady paceAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-39065366023945756162010-12-02T21:51:07.313-05:002010-12-02T21:51:07.313-05:00I am on year #6 with SLE, just a bummer with the f...I am on year #6 with SLE, just a bummer with the fatigue, no one seems to get this part of lupus and it is by far the worse part. so I stopped hosting the huge holiday party, quit being that person everyone went to and scaled back by about 50%. Still very tired after holiday but usually can get through the days themselvesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-2616418536164910902010-12-01T18:21:35.423-05:002010-12-01T18:21:35.423-05:00I agree with what Janet has stated. I also had a h...I agree with what Janet has stated. I also had a hard time adjusting to a lower energy level. It took me a long time to finally start listening to my body and rest before pushing myself too far. It's easier, and less time consuming, to just kick back in the recliner for a little while versus totally having zero energy and spending hours down. I am also very lucky to have a great support system.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-39973758929947073362010-12-01T16:51:50.006-05:002010-12-01T16:51:50.006-05:00I was misdiagnosed for 10 years with RA. I just f...I was misdiagnosed for 10 years with RA. I just found out 2 weeks ago that I have Lupus. This fatigue is a serious bummer given I am a 30 year old whose active and outgoing. I hope it gets easier.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-25418531962573006212010-12-01T12:27:03.841-05:002010-12-01T12:27:03.841-05:00I was diagnosed in 2007 and the hardest part has b...I was diagnosed in 2007 and the hardest part has been the fatigue. Once I acknowledged the fact that the energy level just wasn't there anymore, the coping got easier. When I'm tired I stop and rest or just lay down. If family or friends are planning something I'm just not up for, well that's just the way it is. Luckily they understand. Having people who support me has been one of the single most important things that has, and is, helping be cope.Janet LaPierrenoreply@blogger.com