tag:blogger.com,1999:blog-2595844535299775193.post1882411737832233190..comments2023-10-24T06:56:13.050-04:00Comments on Road to a Lupus Cure: Guest Blog: The Importance of Advocacy DaySophie - LFAhttp://www.blogger.com/profile/04688789367974778219noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2595844535299775193.post-25249511892201087942011-02-14T16:02:47.330-05:002011-02-14T16:02:47.330-05:00Hi Joanne, Mary Jane was a guest blogger for this ...Hi Joanne, Mary Jane was a guest blogger for this post. I am in charge of the actual blog so please email me at yan@lupus.org if you have any questions.Sophie - LFAhttps://www.blogger.com/profile/04688789367974778219noreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-36506544421387513092011-02-12T15:23:20.785-05:002011-02-12T15:23:20.785-05:00I am trying to reach Mary Jane Goodman - Please le...I am trying to reach Mary Jane Goodman - Please let me know how I can blog on this site. I have important information to share but do not know how to do it. I have been dealing with Lupus for 32 years. Many health issues have occured but I have taken control of my life and my disease. It can be done, would love to share with you and many - just don't think it can be done with blogging, need some help. Thanks for contacting me to hear my story Mary Jane. Blessings, Joanne 610-547-2456Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2595844535299775193.post-29440731913401667482011-02-09T12:57:52.918-05:002011-02-09T12:57:52.918-05:00I kept my head in the sand. I wanted to stay igno...I kept my head in the sand. I wanted to stay ignorant of this illness I was diagnosed with. I had suspected it long before I was diagnosed. Now, I try to be more aware and informed of what is going on with my body. I had suffered through some misdiagnoses; now, I don't let the doctors tell me what to do or how to feel about it. I tell them.Anonymousnoreply@blogger.com