February 24, 2011

A Validated Quality of Life Instrument for People with Lupus

From our latest Research Update Newsletter:
Health-related quality of life (HRQOL) is important to measure when new treatments are studied for lupus. There are a number of questionnaires that have been found to be helpful in determining how people with lupus are feeling and functioning in daily life. However, most of them were not developed specifically for lupus, considering the unique features of lupus in people’s lives. The LupusQoL was developed specifically for people with lupus. The LupusQoL-US questionnaire includes the following eight areas, or domains, of life that may be affected by lupus: Physical Health, Pain, Planning, Intimate Relationships, Burden to others, Emotional health, Body image, and Fatigue. Of the eight domains included in the LupusQoL-US, Fatigue and Physical Health were the most affected, followed by Pain, Planning, and Burden to others.

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