Hi. My name is Susan Drinan-Bowes and I work in the Education & Research Dept. of the LFA. I wanted to tell you about our patient education program called “Lupus Now: State-of-the-Art Approaches from the Experts.” It launched in April 2007 and has already gone to four cities.
Basically, this program is designed to educate people with lupus, and their families and caregivers, on the challenges of managing lupus.
The program includes cutting-edge information from scientific leaders in rheumatology, dermatology and nephrology on a variety of topics, including new lupus treatments, cutaneous (skin) lupus; lupus and kidneys; lupus and pregnancy; and lupus and clinical research. There’s even an opportunity for attendees to ask questions of the expert panel.
Two of the programs were conducted solely in Spanish and a webcast of the Spanish program will be available at http://www.lupus.org/ by the end of August. You can view a webcast in English here http://netscore.astutetech.com/lupus.
Maybe our program is coming to a town near you. Check out the schedule for the programs remaining in 2007:
- Denver, CO Saturday, August 25, 2007
- Las Vegas, NV Saturday, September 15, 2007
- New York, NY Saturday, September 29, 2007
- Boston, MA Saturday, November 10, 2007
If you’d like more information about this patient education program, contact me at the LFA at 202-349-1153 or bowes@lupus.org.
We’d love to see you at an upcoming event.
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